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US Breast Cancer: EMR + Patient-Reported Outcomes (PRO) Data

This data set consists of de-identified EMR and PRO data from a geographically representative US population for 11,791 patients as of 2/2020. Patients in this data set have been filtered to contain at least one PRO data point captured.

PRO Inclusion Rule: >= 1 PRO Event (defined as depression, pain, distress, or symptom report)

Breast Cancer ICD10 Inclusion Criteria: C50.011,C50.012,C50.019,C50.021,C50.022,C50.029,C50.111,C50.112,C50.119,C50.121,C50.122,C50.129,C50.211,C50.212,C50.219,C50.221,C50.222,C50.229,C50.311,C50.312,C50.319,C50.321,C50.322,C50.329,C50.411,C50.412,C50.419,C50.421,C50.422,C50.429,C50.511,C50.512,C,,C50.519,C50.521,C50.522,C50.529,C50.611,C50.612,C50.619,C50.621,C50.622,C50.629,C50.811,C50.812,C50.819,C50.821,C50.822,C50.829,C50.911,C50.912,C50.919,C50.921,C50.922,C50.929,C79.81,D05.00,D05.01,D05.02,D05.10,D05.11,D05.12,D05.80,D05.81,D05.82,D05.90,D05.91,D05.92,D24.1,D24.2,D24.9,D48.60,D48.61,D48.62,D49.3,Z12.31,Z12.39,Z15.01,Z80.3,Z8.53, Z86.000

The EMR data set consists of:

File Type | Description
—-|—–
Demographic|High-level patient characteristics (e.g. age buckets, race, marital status, primary language, payer type, socio-economic indicator based on location)
Diagnoses|Diagnoses for Patient (including non-Breast diagnoses), Date of diagnosis, HER2/ER/PR Status (where available), and Stage (where available)
Appointments|Clinic appointments along with no show and cancelled statuses
Administrations|Administration data for primary breast cancer medications, including supportive care, along with dosing and dates
Physician Orders|Script data for primary breast cancer medications, including supportive care, along with dosing and dates

The PRO data set consists of:

File Type | Description
—-|—–
Depression (NCCN Distress)|Scores for all questions, overall score, and date of capture
Distress (PHQ-9)|Scores for all questions, overall score, and date of capture
Pain (Numeric Rating Scale)|0-10 pain score and dates of capture
Side Effects (Modified PRO-CTCAE)|Symptoms and dates of capture

Heapery Attribution License Heapery-Private
Category
Data Schema
Support Contact Email Address support@heapery.com
Data Format
Version number
Language English
Data Size
Last Updated Date 8/11/2020
Refund Policy Refunds not allowed